Pax is superman!!!

Sorry about no post yesterday, when i got home from the hospital last night i was SO tired i couldn't wait to go to bed. Pax is seriously AMAZING. So he only had to spend one night in the CICU. When he woke up that morning in the CICU he had some juice and a WHOLE banana. His stats were stable and he was off all oxygen and blood pressure medication, which is what needed to happen to move him up to the recovery floor. The only thing they wanted to do before he went up to recovery was take out his chest tube that was draining anything from after surgery. (air,blood,etc.) and he had a main line placed in his arm that they also wanted to take out. They told us when they take his chest tube out they would give him morphine because it hurts. Well before they got a chance to give him the morphine  the doctor just came in and took out, he didn't care we were telling him to wait for the morphine. So poor pax got VERY upset, obviously that tube was HUGE. and he had to be put back on oxygen because it dropped low again.  I was so upset when i saw the oxygen on him again, but they did give him morphine after they did it so but the time he got transferred up to recovery he had calmed down enough not to need the oxygen anymore. You see one thing about pax is when he gets really upset, is he does this wonderful thing of holding his breath, and it ALWAYS made is oxygen drop so they would want to put it on him. I figured out that if i was standing by him calming him down and talking to him he wouldn't do it too long and i could get him to calm down fast enough that they wouldn't rush in and give him oxygen. when we finally got settled in the recovery room the nurse told me i get to hold him. I was so EXCITED to finally get to hold him again. I couldn't in the CICU because of the chest tube and everything else he was hooked up to. The fun thing about that time was my Grandma and Grandpa had just walked in the room so they were standing there when i got to hold my baby for the first time since surgery, we were all bawling our eyes out. I was just so happy i couldn't control my emotions. Greg held him for a minute after i did, but pax was getting pretty tired and fussy, so he laid down after that and fell asleep. My mom came up a little later and when she got there he was so happy to see his GG that he stood right up in bed, which the nurses said whatever he feels like doing he can, and she brought him some food and he was shoving french fries in his mouth it was so funny. he played with her for a while, it was so cute to see him acting himself again. He then got really tired after playing and took a good 3 hour nap. once he woke up from that it was about 5 pm so he ate some dinner and was getting pretty antsy being in his crib all day so they let us take him on a wagon ride around the hospital and he LOVED it. When we got back from the wagon ride my family came up, and when he saw my dad he actually got up and walked over to him. then my dad continued to walk him around the hospital, This kid had heart surgery just the day before and he was walking around the hospital, everybody was in SHOCK at how good he was doing. then after that it was bed time and he slept through the night, the nurses didn't even come in once. He had to get up early for a chest x ray at 6 am which he was upset about but did good. and when he got back from that he fell back asleep, then around 9 he had to go get another echo done to make sure the repair was healing correctly and that everything looked ok with his heart. They of course wanted to sedate him for the echo but we new how bad he would react to the sedation so we told them we would just hold him during the echo. They were not happy at all about it, they require babies to be sedated since they have to hold REALLY still, but we promised he would, and sure enough he held perfectly still the entire time, the tech was amazed he said he had never seen a baby hold so still. after his echo he ate some breakfast and got his first sponge bath, he loved it. once we got the good news that all his tests came back perfect they said we could GO HOME, I was like WHAT!?!? i didnt think we would go home until thursday or friday. The surgeon came in and talked to us today and said pax is doing unbelievably good that he felt like he should go home. He said pax is his first patient with this surgery to go home with in 48 hours after having heart surgery. so right now we are HOME!!!! pax has been sleeping since we got home. Its been amazing to see him be so strong and handle everything so well. This nightmare is finally behind us. I'm just so happy i cant even believe how awesome this experience has been, not nearly as bad as i thought.

 Holding my baby for the first time.

 getting a burst of energy to stand up just a day after surgery.

 getting hugs from his favorite person GG

going on a wagon ride around the hospital.

 this is what he would look like when he wasn't feeling good, usually after his pain meds would kick in he would get happy again.

This is what his incision looks like. It is way bigger then what they showed me before they did the surgery. The only hard thing is we cant pick him up by lifting him under his arms, which is how you always pick up a baby, so we have to scoop him up from his bum, he has helped allot and usually when i go to pick him up he will wrap his arms around my neck so it makes it easier. it will take about 6 weeks to heal, and no baths for 2 weeks only bed baths.

 

this is my happy boy when we got home from the hospital, he was so happy to be home. he seriously was sitting on the couch giggling.